A beautiful post from a fellow blogger

I had to contact the author of this post to get her permission to repost a portion of it. She has so perfectly summed up what it is like to live with MS. Thank you Angela (from Nova Scotia). She has a great blog that you should all read:
Gracie’s Mum: A Story of a Mum with MS

Living with MS is much like hurricane season.

All year long.

Nobody knows why some people develop MS while others don’t. Nobody knows why some people have mild cases of relapse-remitting that remain in remission for years.

Nobody knows why some people have faster cycling forms of relapse-remitting. Nobody knows why some with relapse-remitting graduate to Secondary Progressive and others don’t. And nobody knows why some people develop Primary progressive right off the bat.

And nobody has the cure.

And even more importantly, those with any form of MS have no idea when or where the next attack will come and what damage will be left in its wake.

Much like hurricane season, many will be ready and prepared only to be relieved from time to time when not much of anything has happened at all.

Many will face a wrath of nature that no amount of planning could have ever prepared them for.

So what do people who live in the path of hurricanes do?

They live, they breathe, they hunker down for the long haul, they rebuild if necessary only to do it all again.

But very few move away out of fear.

They adapt or die.

So, while I start making longer grocery lists that include canned goods, bottles of water, batteries and candles I am confident in the fact that I too am as prepared as I will let myself be for the next one, which has every chance of being the big one.

And when and if it comes I have but one thing to say.

You better bring it ‘cause you’ve met your match this time.

Domestic Goddess? Hardly

I officially crossed over to the dark side (shudder). I did something I never thought I’d do. I am even a little bit ashamed. I swore, up and down that I would never resort to something such as this.

I ironed the pillowcases.

I know, it’s disgusting. Me, a self-proclaimed “nothing like Martha Stewart” turned on the iron, waited for it to heat and pressed it against the pillowcases full of wrinkles. In my defense, I did let them sit in the laundry basket, waiting to be folded for about 4 days. So I can hold onto a little of my self-esteem.

Don’t get me wrong-I like to bake and do some things around the house. But I’m not one to obsess about it. I dust when I see the dust. I clean when I see something needs cleaning. I keep my kitchen neat. I scrub the toilets. But I don’t fret about it. I am not one who says, “Every Wednesday I clean the bathrooms, and every Thursday I clean the floors and every Saturday I do the shopping, not at just one store, but maybe 2 or 3, depending on what I need.” What? (And yes, I know someone like this) I remember having a conversation with the person referenced here and she made a comment, “The most important things to me are cooking and keeping my house clean.” I came back with, “The most important things to me are my family.” I would much rather spend my time playing a board game or going outside with my son, riding my horse, reading or knitting (yes, that is my one domestic-related vice). I like to see a well-rounded life, not one that makes me a slave to the laundry or the floors or my countertops.

I would never have thought I’d see the day I’d iron a pillowcase. My husband was thrilled as that is what his mother did when he was growing up. He was the kid with the creases in his jeans. His mother even ironed his underwear. I told him I stopped at pillowcases. We’ve been married for 12 years and this is the first time I ever laid iron to case. It will be a long time before it happens again. So I proudly will proclaim myself the opposite of Domestic Goddess. Hmmm . . . what is the opposite of a Goddess? A Troll? That’ll work. I’m a Domestic Troll and proud of it. (I looked for a good image of my Troll, but I couldn’t decide. I included two. I can choose depending on my mood. I’m leaning a little toward the Warrior Troll. I think that suits me a little better.)

Warrior Troll

Maybe her?

The Voice of Thousands – we’ve got the power

In the aftermath of the Jim Alesi debacle (for those of you who haven’t heard, due to the pressure, he dropped the lawsuit), I’ve had time to talk to many of our supporters. First and foremost, we all want to say a very heart-felt THANK YOU to everyone who contacted us to tell us we had their support and to tell us the outrage this whole debacle caused. It was incredible – the number of emails, text messages, phone calls we received – from people we knew and from many we didn’t know. And I came to realize the power that we have if we all speak together. The whisper of one person quickly becomes a deafening roar when there are thousands. Tens of thousands. We had emails from all over the country and even the world. We received one from Australia! Apparently injustice isn’t just a regional issue!

The media was critical in this colossal mess. The blogs, the articles in papers, the websites, the radio . . . the list is endless. The reporters and radio hosts were so important in delivering the message. The term “viral” was used regarding the maelstrom of emails and comments. I will admit, it was amazing to be a part of the media storm, in fact to be in the center of it. I had no idea what a tidal wave it would create. Maybe I should say tsunami! From one blog post that I put on here shortly after we learned about the lawsuit to a post on FaceBook  to the thousands of websites that quickly became devoted followers of the case. (We had over 5000 hits on our website the first day).

I saw first-hand that the whisper of only one person quickly becomes a deafening roar when it is thousands of us. Tens of thousands. Through our words, by making that deafening roar, we stood up to the powers-that-be and we made a difference. And if feels amazing.

Rachel Barnhard at 13WHAM wrote a great article:

Did Social Media Play Role in Alesi Outrage?

Lawsuit dropped

Senator Alesi dropped his lawsuit against DiRisio Builders and the Heckers. I’ve included a link to an article about it here.

http://www.capitaltonight.com/2011/01/alesi-bows-to-pressure-drops-suit/

We want to thank everyone for their emails, texts, and support. Your help in spreading the word has been incredible. We have received emails from all over the world. The thousands of blog posts and comments have been amazing – thanks to all of you, we learned that we were not alone in this fight!

A classic quote from James Alesi

“The simplicity of my plan is also its strength,” said Sen. Alesi. “Give businesses incentives and the ability to stay and grow here in New York and then leave them alone as they try and do so.”

How does a lawsuit qualify as an incentive? And how does being sued increase your ability to grow and encourage you to stay in NYS?

(From the Greece Post: http://www.greecepost.com/feature/x104382784/Sen-Jim-Alesi-speaks-on-Job-Creation-and-Retention-Plan-for-2011)

More about Senator Alesi

My husband was interviewed by the Albany Times Union and this article has a few additional details. The writer here names the person who was with the Senator when he trespassed. Apparently, she was a Senate Director of Operations. You can read the article here and please pass this around. This is getting exposure not only around the country but around the world. Everyone is appalled at what our elected officials can and will do!

http://www.timesunion.com/default/article/Senator-s-slippery-lawsuit-973609.php

 

More coverage:

http://www.whec.com/article/stories/S1936623.shtml?cat=0

http://www.13wham.com/news/local/story/Senator-Alesi-Sues-Couple-that-Declined-to-Press/LCflMQQFr0qttwDf_dAapw.cspx

http://rochesterhomepage.net/search-fulltext?nxd_id=228986

http://www.democratandchronicle.com/article/20110121/NEWS01/110121004/James-Alesi-sues-over-broken-leg-at-construction-site

More Alesi info

If any of you are looking for MORE info and coverage on the lawsuit from Senator Alesi, search “Alesi trespassing.” Or any variation of that theme. You will be amazed at how many sites, blogs, and comments are out there. We have seen thousands of comments from not only our country, but from as far away as Australia! And  you’ll be hard-pressed to find one that is not supporting the Heckers and DiRisio Builders.

Our elected officials taking advantage of the system? Sounds like it.

I have to tell you, this has me fuming and sick. I hope you all are as incensed as I am at this situation. Please forward this on to everyone you know.

On January 19, 2008 my husband received a phone call from the Monroe County Sheriff that someone had broken into a custom home he was building in Perinton. The trespasser had entered the home, attempted to climb a ladder from the basement to the first floor, slipped on the ladder and broke his leg. The kicker here? The trespasser was James Alesi, our NYS Senator. Senator Alesi was at a custom home DiRisio Builders was building for a client-a private sold job. There was no “For Sale” sign or a realtor sign on this particular property. IT WAS NOT OPEN. It was late afternoon and the home was secured. He proceeded to walk around back through the snow, entered the building and attempted to climb up a metal extension ladder (in his wet dress shoes) and slipped and broke his leg.

Today, a letter arrived from an attorney saying that James Alesi is suing  the home owner and DiRisio Builders for negligence and for his pain and suffering. This is the same Senator who is a member of the Special Committe on Ethics and he is the CHAIRMAN of the Senate Committee on Commerce, Economic Development and Small Business. So he is a proponent of trying to promote small business? Isn’t suing DiRisio Builders, a small custom home builder, a contradiction of terms? He was trespassing and broke his leg after gaining illegal entry. He was trying to look around for his friend. If he was that interested in the home, my husband would have been more than happy to meet him at that home or our model to show him around. Yet, he decided to take matters into his own hands and enter a private property. I guess the rule of law doesn’t apply to some elected officials? Was he above the law?

Oh, by the way – the statute of limitations for both civil and criminal trespass in NYS is 3 years. What a coincidence that he filed his suit on exactly the last day of the 3 years???  So now he is allowing no time for either Lou or the home owner their right to due process.

The Monroe County Sheriff Deputy asked my husband and the home owner when this all happened if they wanted to press trespassing charges and they agreed not to add insult to “injury” and declined to press charges.  So three years TO THE DAY of the accident the letter arrived saying Alesi was suing. This is absolutely disturbing that our elected officials who create our laws then turn around and take advantage of these laws and the system for their own personal benefit. A man of the people? More like a man for himself.

An article was written by Gary Craig about this in the Rochester Democrat and Chronicle in March of 2008,  “Senator breaks leg, trespassing into model house” was the headline of the article. I’m hoping by drawing attention to this situation we can spread the word and the message that his original and subsequent actions are inexcusable and unexplainable. Please repost this in your blog, FaceBook page, or send it in email to everyone you think who would be interested in this.