So I now have 3 appointments with Neurologists. It is so surreal – I feel like I need to shop around, like for a car. This is someone who holds my future in their hands. Yes, I try to be proactive. Yes, I try to be informed, but a doctor is who we look to to give us advice, prognosis, all of that stuff. I want someone to tell it to me on the straight and narrow, no sugar-coat, no babble. Just tell me what to expect and let me forge ahead. I guess it wouldn’t bother me so much if I wasn’t in the middle of having an attack – it feels like I am under the gun to find someone right now. But I guess that’s good . . . I call around to suggested doctors, and I am getting tired of the same “you can see the PA”. No offense, but for my first appt, I really want to see the Dr! I have heard this at least 3 times already.
It is frustrating because my doc, as he is telling me to find someone new, is also telling me I am now in the ‘danger zone’ for the meds I take and might want to consider switching. What??? This drug (tysabri) has been my lifesaver. I truly believe without it, I wouldn’t be functioning as well as I do now. So let’s just throw that into the mix.
But enough of my bitching. I looked around me at the waiting room the other day and saw all of these people, waiting for news, help, comfort. And now they’ll have to look somewhere else. I have seen him for 17 years. Close to 1/2 my life (give or take a few years).