So here we are in Autumn. And here I am with another attack. Seems to be my pattern for the last few years. I think 2 attacks a year isn’t so bad. Better than the 5 I used to have. But my Dr. has other thoughts. He thinks that is too much and is worried about the progress I seem to be making. Getting harder to recover, I am consistently having attacks in the spring and fall. So now he wants me to add a dose of Solumedrol with each of my monthly Tysabri infusions. For those of you unfamiliar with SolMed – it is a high does steroid given by IV. No, not the muscles, hair and zits steroid, but a super beefed up Predisone. But I wasn’t a big fan of that as the side effects are wicked. So we compromised with 4 times a years. Still sucks. But the kicker: I tested positive for the JC Virus with makes me susceptible to PML (a potentially fatal brain aliment). So with the combo of my regular med and the dose of SolMed, I am depressing my immune system so much I have to be very conscientious about any symptoms I have to have. So basically if I don’t do the SolMed dose I could have more attacks and not recover and if I do it I could be asking for PML. Doesn’t that just all suck???
But I guess in the positive – I usually feel pretty good, am staying busy, doing the things I want. It is just this nagging little problem that is a thorn in my side. I would love to hear from anyone out there dealing with something similar.